Chronic illness cat, you speak the truth.
Gentle hugs,
Chels
I’ve finished my 5 week physical therapy session! My primary care doctor referred me to the orthopedic sports medicine center for PT in an attempt to help with my FMS symptoms. I was happy to do it, because if I can avoid taking more medication, and learn new ways to manage my pain, I’m all for it. Luckily, my mom has gone to PT a few times over the past several years, and I’m familiar with the staff at OSM. So, my therapist was already a little familiar with me and my symptoms, and that always helps in any health related situation.
There are some exercises I really love (not because I’m excited about exercise, necessarily, but because they do seem to help,) and there are some exercises that seem to exacerbate my symptoms. Here’s what I learned in my 5 weeks of PT:
1. You don’t have to do all of the exercises all at once. My therapist helped me figure this one out. She essentially gave me permission to spread out the exercises, and listen to my body. She suggested that if I had used my upper body more one day, or had more pain in my upper body, to just concentrate on core or leg exercises, and vice versa. This helped me not be so hard on myself. I tend to overdo when I have a little energy, so it kept me from causing myself more pain, and feeling guilty for not being able to do all the exercises I wanted to.
2. You can do the resistance exercises without the resistance. For me, the resistance exercises (with the band,) were more harmful than helpful. I have a reoccurring pain/knot in my right neck and shoulder area that causes a lot of pain down into my arm and hand. Nearly every time I used the band, I’d hurt for a week. So, I started doing some of those exercises without the band. I told my therapist, and she was totally fine with it. Of course, it’s not going to give the exact same results, but you’ll at least be mimicking the motions.
3. I’m stronger than I thought. Thankfully, I lead a relatively active life, and was active before the fibro symptoms started, but I’d been down on myself lately for not being as active as I want to be. It turns out, my core is pretty darn strong. My therapist was surprised, probably because I’d mentioned how I’m not as active as I want to be, and let me know that my core was stronger than I thought. When you have fibro, it’s especially important to have a strong core, because it affects the way the rest of your body moves, and can give you better posture when sitting and standing. That means you can sit and stand longer, which may not sound like a big deal to those without fibro or chronic pain or fatigue, but it’s a big deal! Sitting and standing for long periods of time are two of the biggest issues with FMS, and cause a lot of pain.
4. My left side really is weaker than my right side. I’ve always said that I tend to have more pain on my right, and more weakness on my left, and now I have proof. My left side is wobbly, y’all, but that’s ok! Now I have specific exercises to bring that side up to speed. It’s not uncommon for one side of your body to be more <insert adjective here> than the other. Our bodies are asymmetrical, our brains work differently for each side, and most of us have a dominant side, so it’s something everyone experiences. It may just be a little more obvious when you’re doing PT.
5. I shouldn’t have donated our exercise ball. Why, oh why did I get rid of that bouncy thing? Some of the most effective exercises can be done on an exercise ball, and just sitting on one can strengthen your core, lower body, improve posture, and balance. Time to find a new one!
6. I still needed to increase my meds. The main reason my doc referred me to PT was to avoid giving me more medication. Unfortunately, after several years, the Tramadol I take for pain doesn’t last as long. I started waking up in the middle of the night in pain, and experiencing breakthrough pain during the day. She and I agree on taking a whole body approach, and avoiding medication whenever possible. After a few weeks of PT, though, it was clear to me that I needed the one extra dose a day I asked for at my appointment. I don’t need to take more every single day, but now my prescription allows for me to take that extra dose if I need it. It’s not a failure, though, it just means that my body is changing, so I have to honor that.
I hope that you’ll consider adding some physical therapy to your pain management routine. The stretches have been the most helpful for me, but you may find that another kind of exercise helps you. You will have to take things slowly, and that’s fine. Allow your body to adapt to the new activity – it’s a challenge in and of itself. Talk to your doc and see if PT is something that could help lessen your pain and possibly increase your energy level.
Gentle hugs,
Chels
When you adjust to a life change that limits your physical and mental abilities even slightly, it takes patience. For a recovering perfectionist and independent like me, it’s a sometimes excruciating process. So, I’d like to share some things I’ve learned so far.
1. Your new normal. In most ways you’re the same person, but, let’s be real, there are things you can’t do that you used to be able to do. It may be a sport or a technical skill, or it may be something as simple as enjoying a night out with your friends. The key is not to compare your normal to anyone else’s, or, perhaps more importantly, your old version of normal. If you need to make your goals and achievements smaller, that’s okay. It doesn’t make your accomplishments any less significant! If all you can manage to do today is get out of bed, brush your teeth, and take a shower, then you’ve done three things, and you should be proud. Those three things could be the equivalent of running a day’s worth of errands during your old normal.
2. Be honest and patient. Some people will understand and try to adapt to your new normal, and others might get frustrated or take it personally that you aren’t able to spend as much time with them or do the things you used to do together. Be as honest with yourself and your family and friends as you can. Explain to them what your limitations are now, and why. Just like you’re expecting them to have patience with you, have patience with them if they forget you can’t do something, or if you’re left out of an event because they just assume you wouldn’t be able to do it. They may not feel what you feel, but they’re going through this process with you, and, hopefully, trying to adapt.
3. You may lose a friend (or two.) It’s sad, but usually losing a friend over your illness has a silver lining. Not everyone you know may be emotionally capable of seeing you go through what you’re going through, in which case you’d spend the majority of your time and energy comforting them instead of taking care of yourself, anyway. It could also be that they were just a “seasonal” friend, or maybe not a good friend at all. If their friendship depends entirely on what you give them and not on what they can give to you, then, again, you could spend all your time and energy trying to keep up that dynamic, even if your health suffers for it. Remember that people handle stressful situations differently. That doesn’t make them bad people, just different, and you both may be better off going your separate ways.
4. Best buds. Just like you may lose someone you love, you’ll probably figure out which of your friends will stick by you no matter what. You may also form strong relationships with people you may not have been close to before. Someone may struggle with a similar illness, or they may really love staying inside and being a homebody – something you may have to get used to if you’re a person who likes to go out a lot. Be open to new friendships!
5. Body language. If you weren’t aware of your body before, now’s the chance to practice listening to it. I still have a tendency to overdo it on days that I feel better, but then I pay for it later. Understand how you need to treat yourself in order to prevent flares or unnecessary pain, and you’ll save yourself a lot of grief. Manage your time wisely, and spread out chores and responsibilities if you can. For instance, do one type of cleaning for 10-15 minutes a day, rather than cleaning your whole home at once.
6. S.O.S. When you learn how to listen to your body, you’ll learn that sometimes all the time management and pacing yourself doesn’t quite do the trick. You may have enough energy to go to the store, but you may not be able to carry all of the groceries. Ask an employee to load your car, and ask a friend or family member to help you unload when you get home. Believe me when I say that it’s not worth your pride to hurt yourself. Usually, the people who want to be there for you feel helpless when it comes to your illness, and asking for their help can benefit them just as much as it benefits you. As a friend at church said to me once, “Don’t deny someone a blessing by refusing their help.” If someone offers to help when you need it, just say yes.
What’s the biggest lesson you’ve learned while coping with your illness?
Gentle hugs,
Chels
Touch is so important. Studies have shown that children who don’t receive physical touch develop literal skin hunger, and suffer from psychological effects. While I like my space, I grew up in an affectionate family, and I’m happy to give hugs and hold hands. It’s why I got my massage therapy license – I know how much touch can do to heal wounds people don’t even know they have.
It’s not uncommon for people to cry during a massage treatment, not because of physical pain, but because of the emotional release that can come with physical contact. I truly believe that we’ve created such busy lives for ourselves that we haven’t created time to recognize and honor our own emotions. It was a privilege to be a massage therapist while it lasted. Unfortunately, I was diagnosed with FM during the middle of school, and while I stubbornly finished my internship, took the certification test, and went on to massage professionally for several months, it proved too strenuous for me. (Massage therapy is on the list of the top 10 most physically strenuous professions.)
So, I practice what I’ve learned on myself, my husband, and occasionally my mom. One thing that my mom and I have always practiced is acupressure. My knowledge of the subject isn’t extensive, but I’ve helped more than one friend get rid of a headache using pressure points. If you’d like to try it yourself, here’s an easy to follow chart to try on your left hand:
The general suggestion is to hold the point firmly for 7-10 seconds.
For more info, visit webmd.com.
Massage and acupressure are considered medical treatments, and, as with any other treatment, you should consult your doctor before trying it. If you have arthritis, tumors or cysts in the massage area, cancer, or if you’re pregnant, you may want to avoid massage or acupressure altogether. (Massage has been linked to, but not proven to cause, contractions and early labor in pregnant women.)
Gentle hugs,
Chels
I had a couple of days of relief from fibro pain, and the, bam! It hit me again. I think it’s the weather change. It’s been nice and rainy here in my part of Texas. So, what do I do when my body feels older than it should? (Whether it’s chronic or not?) Here are a few tips:
1. Epsom Salt. Lots of it. Pour it in a bath and get in, or soak a washcloth in a sink full of hot water and epsom salt and apply it to the areas that are sore.
2. Eat something healthy and drink lots of water. Especially if you’re starting the day, drink plenty of water throughout, and start the day with a healthy meal to continue the trend all day. You are what you put in your body.
3. Moist & dry heat. Some people swear by ice packs, but I swear by heat. Ice packs constrict the bloodflow and muscles to numb the area, but in turn makes me hurt. So, I reach for a heating pad, or head to the shower to increase healing bloodflow and relax my body.
4. Aromatherapy. There are certain scents that are said to be energizing, like peppermint, eucalyptus and tea tree. You could also use a relaxing scent, like vanilla or lavender. Put a couple of drops on a cotton ball, and swab your light bulbs, or put a couple of drops in your bath. You can even create sachets to put with your clothing, so that your favorite scent stays with you all day.
5. Yoga. Honestly, I’ve not been doing well practicing yoga lately (I need to find my motivation!) Yoga has helped me in the past, though, because it’s so easy to modify the poses to your ability level. It can be gentle or dynamic, depending on how you’re feeling, and it’s low impact, which generally means less joint and muscle pain. If you can barely get out of bed, just gentle stretching can help so much.
6. Breathe. This is another reason I like yoga – it forces you to focus on your breath. If you find yourself tensing up, stop what you’re doing, face away from a stressful task or just close your eyes, and take 3 deep breaths. This is something my mom and I have done for as long as I can remember. Inhale for at least 6 counts, then try to make your exhale longer.
7. Visualization. I’ll visualize while using breathing techniques before bed when pain is keeping me awake. A simple visualization is to picture a healing ball of your favorite color of light in the middle of your body. As you inhale, it grows, and as you exhale, it begins to spread. Do this until the light is covering your whole body.
8. Isometric exercise. They’re great to keep your muscles active, but also to relax you. Tense your muscles, starting in your feet, for a few seconds, then relax completely. Move to the next body part, your calves, and repeat. Move up into your thighs & glutes, then your stomach/back, arms & hands, shoulders & neck, even your face, and when you’re done, your muscles will feel less tense, and you may feel less pain.
9. Rest. Well, duh, right? Really, though, you know your body better than anyone, so listen carefully to what it needs. Don’t overdo your activities for the day, and practice two magic words: “no,” and “please.” Helping yourself by saying no to certain tasks is important. There’s no shame in saying you aren’t up to an activity; you owe it to your health. Asking for help is also hard, but it’s essential. You may also be doing a loved one a favor by allowing them to do something to help you.
Gentle hugs,
Chels